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Soon after this we got a
tentative diagnosis of Rett Syndrome. We read all we could on the subject and were
totally devastated. At the age of four Stacey received a definite diagnosis and we had,
by now, come to terms with Stacey's condition. She developed epilepsy and had started to
clap her hands at her mouth, constantly and repetitively, which is a characteristic of
Rett Syndrome. She was quite severely handicapped by this time and had lost the ability
to walk and talk and more or less lost purposeful hand use. She started to attend a
special school and loved it. She was now really happy and content and a real pleasure to
be with. |
