A brief
summery
As we looked at our newly labelled handicapped daughter aged 3, we
couldn't understand what had gone wrong with our beautiful little girl, Stacey. The child
we wanted so much and whom we loved more than words could ever say had, it seemed,
changed almost over night.
Our once normal baby could no longer walk and talk and
we were totally devastated. The future looked bleak, devastating beyond belief for Stacey
but also for us. We where thrust into a whole new world of fear and resentment. A new
role as parents of a disabled child, things like that only happen to other people don't
they? We didn't want this new role; we wanted to be a normal family and wanted our normal
life back. We didn't want to have to provide 24 hours 7 day a week care to someone who
would be totally dependent on us for everything for the rest of her life. We didn't want
to learn how to become a teacher, nurse and physiotherapist.
A feeling as strong
as bereavement overwhelmed us, as we realised none of our dreams for Stacey's future
would come true. No career, no husband, no children. The pain was unbelievable as reality
struck like a bolt of lightening. It was scary very scary. A tentative diagnosis of Rett
Syndrome was made when Stacey was about 3 and we read everything we could find on the
subject and gradually acceptance slowly crept in. We finally came to terms with our new
career and set out on a journey, a journey of learning and discovery.
We felt
privileged and honoured to be Stacey's parents. She didn't demand material things, just
lots of love and attention, which we gave with great enthusiasm and passion. The feeling
of love we felt for her was so intense that it seemed to overwhelm us at times and we
could truly feel the aches and pains she was experiencing. By the age of 5 things were
great again. Stacey was happy and always laughing. She had a wicked sense of humour and
really brought the sunshine back into our lives. Please continue to read Stacey's web
site, it may give you an insight into the up's and down's families like ours experience
on a daily basis. |